Children Who Survive Congenital Heart Defects Can Face New Problems As Adults

Sara's nephew and Wendy's son Benny painted this image of a heart that hangs in the author's home. Benny Tsabba/Wendy Wolfson for NPR

hide caption Sara's nephew and Wendy's son Benny painted this image of a heart that hangs in the author's home. A few weeks ago, our family gathered for a meeting that we hope will save my sister's life. Our goal was to demonstrate to a hospital social worker that we could take care of her should she get a heart transplant. My sister Sara is now 50. (NPR isn't using her last name to protect her medical privacy.) For her to get on the transplant list, her anatomy needed to be suitable and her antibody levels low despite prior surgeries. Continue reading…

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